Courtesy AIDS United
Courtesy AIDS United
Courtesy AIDS United
This eloquent, excellent article is from The National Association Of People With AIDS/HIV (NAPWA) newsletter, Positive Voice. It outlines many of the challenges we face as a country- including homophobia, stigma, and stinginess- in getting HIV under control:
This is an exciting time for all of us who live with HIV or are affected by it. Theoretical models predicted for years that treatment-as-prevention could work, and the last year confirmed it. In the elegantly designed HPTN 052 trial, results showed that serodiscordant heterosexual couples had a drastically reduced risk of infection for the HIV-negative partner when the positive partner was receiving effective treatment with antiretroviral drugs.British Columbia didn’t wait for trial results. For several years, the province has aggressively sought to find and treat as many HIV-infected people as possible, and the numbers of AIDS deaths and new HIV infections are now coming down. Dr. Julio Montaner, father of the B.C. program, remarked recently that the falling number of (known) new infections was not the result of less testing, or of safer sex. That leaves only one plausible explanation: reduced community viral load.
So we can end this epidemic. It’s time to start calling it The Unnecessary Epidemic.
As NAPWA President and CEO told us in the previous issue of Positive Voice, ending the epidemic will take resources, resources, resources. Resources for high-impact prevention programs. Resources for treatment and support services for all who need them. Resources to fix an unfair health care system.
But it’s also going to take more than resources. It will take changes in public attitudes. Twenty percent of Americans living with HIV don’t know it. Some of them don’t because prevention and testing programs haven’t reached them. Other don’t because having HIV can be so stigmatizing that they would really rather die slowly than know their status.
So let’s look at some public drivers of HIV stigma, and then look at the consequences.
The evils of “second-hand sodomy”
On the site Conservapedia.com – think of it as Wikipedia for the “right”-minded – Americans for Truth (!) president Peter LaBarbera writes, Why isn’t there a concerted government effort – akin to the current anti-smoking campaigns – to reign in homosexual promiscuity – beginning with closing down all sex businesses (bathhouses) that facilitate homosexual perversion? (Of course, we favor closing down straight prostitution businesses as well.) We know that bisexual behavior (men on the “down low”) help spread dangerous diseases to the general population: how many deaths and illnesses have to result from “second-hand sodomy” before authorities take corrective action?
Translation: it’s all the gays’ fault. If we could just shut down all gay sex, the epidemic would go away. Never mind that a majority of African Americans living with HIV are women, in numbers that could not possibly be accounted for by some partners’ “down low” adventures, and HIV in Africa was a heterosexual disease from day one. LaBarbera is saying that sex he disapproves of is perversion, perversion leads to disease, and “second-hand disease” is tantamount to murder.
Just as bizarrely, Dr. Peter Duesberg continues to contend that HIV is harmless and AIDS is caused by gay sex and drug use. Somehow, we just don’t think most of the African American women living with AIDS have been having gay sex and sniffing poppers…. And never mind the experience of people with HIV who were on the ropes in 1996, when drug cocktails based on protease inhibitors were just coming into use, and eight weeks after we started our new drug regimens our viral loads were down, our T cells were up, and our dermatologists were telling us we didn’t have to come back anymore for our every-two-weeks appointment to zap new KS lesions. Practical lesson: control the HIV and the AIDS symptoms go away. Conclusion: the virus causes the symptoms. Discussion over, Dr. D.
Not victim-free expressions of opinion
We can laugh at these extreme opinions, but publishing them is not a victimless crime. Duesberg’s opinions delayed wide use of antiretroviral drugs (ARVs) in South Africa for years, and people died. The shame about non-majority sexual orientation spread by Conservapedia and others keeps people who know they should get tested from doing so and having to live with a positive result. Using criminal law as a (failed) tool to prevent new infections drives infected people and injection drug users underground, where prevention and treatment services can’t reach them.
How the Grinch stole your needle exchange
The 2013 federal budget just passed reinstates the former ban on federal funding for one of the most targeted, cost-effective HIV programs ever conceived: injection needle exchanges. The ban was one of many prices, just before Christmas, for passing any budget at all. The underlying thinking may have had something in common with Conservapedia’s panacea of outlawing gay sex: just say “there ought to be a law,” whether it’s a matter law can deal with effectively or not. It can’t, and we wonder whether many members of Congress demanding the ban knew that. Certainly those with competent health policy staffers did.
Naming stigma – and praising constructive action
As a community of people who live with HIV or serve those who do, we have a responsibility to call out stigma wherever we see – HIV stigma, homophobia, unease with transgendered people, the cruel expectation that people trapped in sex work or drug use are in control and should just go cold turkey and quit. This is more important than any quarrels we may have among ourselves about PrEP, condoms, or whether to concentrate on developing a preventive or therapeutic vaccine first (scientific accident will decide that for us).
Two HIV awareness campaigns are teaming up this month to promote HIV testing and treatment. The Get Yourself Tested campaign (GYT) and Greater Than AIDS (>AIDS) have teamed up for National HIV Testing Awareness Month, to promote greater awareness of the importance of HIV testing, treatment and education.
As we mark 30 years of AIDS, it’s worth noting the tremendous progress made in terms of the life-saving treatments now available, but to benefit from these advances one must first know their status,” said Tina Hoff, Senior Vice President & Director, Health Communication & Media Partnerships, Kaiser Family Foundation, a partner on both campaigns. “Be Greater Than AIDS: Get Yourself Tested is an empowering, uplifting message that makes getting tested an act of pride, not shame.”
“Our audience has never known a time without HIV, but through efforts like GYT, we’re committed to empowering them to forge a world where HIV doesn’t exist,” said Jason Rzepka, Vice President of Public Affairs, MTV. “We’re proud to join with this remarkable coalition and reinforce regular testing as one way America’s youth can be greater than AIDS.”
According to the U.S. Centers for Disease Control and Prevention (CDC), of the more than one million Americans living with HIV today, one in five of those infected don’t know their status. The CDC encourages all Americans between the ages of 13-64 to get tested on a routine basis as part of their overall health and well-being similar to cholesterol, blood pressure, and other screens.
Fear is useless, get the test. The key to a longer, healthier life with HIV is early diagnosis and treatment. So if you’ve been thinking about it, do it. If you need a friend to go with you, call someone. Better yet, grab your best friend and just go together.
The key to preventing this disease is treating the people who already have it. We know that people who are taking their meds are much less likely to pass on the virus. And if they don’t pass on the virus, it can’t spread. The greatest reason for this epidemic today is this: people who don’t know their status- who are HIV infected and are not treating it, are infecting their partners. Treatment may well be the greatest key to prevention.
Let’s stop the cycle.