Medicaid Expansion Likely To Lower Deaths

Medicaid expansion under the Affordable Care Act is contentious- mostly because Republicans don’t want to give President Obama any credit- for anything. But if this study, reported today by the New York Times, is any indication, not going forward could be deadly.

Senate Passes Insurance Industry Aid Bill

Senate Passes Insurance Industry Aid Bill (Photo credit: Mike Licht, NotionsCapital.com)

Into the maelstrom of debate over whether Medicaid should cover more people comes a new study by Harvard researchers who found that when states expanded their Medicaid programs and gave more poor people health insurance, fewer people died.

The study, published online Wednesday in The New England Journal of Medicine, comes as states are deciding whether to expand Medicaid by 2014 under the Affordable Care Act, the Obama administration’s health care law. The Supreme Court ruling on the law last month effectively gave states the option of accepting or rejecting an expansion of Medicaid that had been expected to add 17 million people to the program’s rolls.

Seems fairly reasonable. So why would anyone reject the expansion?

Medicaid expansions are controversial, not just because they cost states money, but also because some critics, primarily conservatives, contend the program does not improve the health of recipients and may even be associated with worse health. Attempts to research that issue have encountered the vexing problem of how to compare people who sign up for Medicaid with those who are eligible but remain uninsured. People who choose to enroll may be sicker, or they may be healthier and simply be more motivated to see doctors.

The New England Journal study reflects a recent effort by researchers to get around that problem and allow policy makers to make “evidence-based decisions,” said Katherine Baicker, an investigator on the study who served on former President George W. Bush’s Council of Economic Advisers.

“I think it’s a very significant study in part because of the paucity of studies that have really looked at health outcomes of insurance coverage,” said Karen Davis, the president of the Commonwealth Fund, a nonpartisan research foundation. “Actual mortality studies are few and far between. This is a well-done study: timely, adds to the evidence base, and certainly should raise concern about the failure to expand Medicaid coverage to people most at risk of not getting the care that they need.”

A Republican-appointed official calling this “evidence based”- will it be enough? Probably not. But the evidence is still there:

“So often you hear, ‘Oh well, poor people just shoot each other, and that’s why they have higher mortality rates,’ ” said Diane Rowland, executive vice president of the Kaiser Family Foundation, a nonprofit group. “In the midst of many claims about what Medicaid does and doesn’t do, it actually shows that it cannot only be beneficial for health, but in preventing some of the premature deaths of the uninsured.”

Janet M. Currie, director of the Center for Health and Well-Being at Princeton, said the new study, combined with the Oregon research, should help transform the Medicaid debate into one about dollars, rather than over whether covering poor people improves health.

“This says, well there is benefit to giving people insurance,” Dr. Currie said. “Maybe you don’t want to pay the cost, but you can’t say there’s no benefit.”

Rehberg Leads Efforts To Defend Cylon, er, Corporate ‘Personhood’

, member of the United States House of Represe...

, member of the United States House of Representatives. (Photo credit: Wikipedia)

I’ve been watching Battlestar Galactica (Yeah, I know, I’m a little behind- but I’m a busy guy) and it occurred to me that the Cylon’s (machines masquerading as people) war with human beings is the perfect model for the Citizens United decision. Both Cylons and Citizens United were created by people- and both threaten to wipe out civilization as we know it. And for those of you who aren’t geeks (like me)- think Frankenstein.

From the Montana Democrats:

Congressman Dennis Rehberg is leading efforts in Montana to defend the notion that corporations have the same constitutional rights as people, calling efforts to undo the Citizens United decision “theater.”

Senator Jon Tester has been a leading opponent of Citizens United and the corrupting influence it brings to Montana’s elections.  Tester also supports Senator Max Baucus’ constitutional amendment, which would provide a permanent fix to the Citizens United decision by putting elections back in the hands of Montanans and preventing corporations from drowning out the voices of voters.

According to news reports, Congressman Rehberg, who agrees that corporations are people, is dismissing efforts to undo Citizens United, saying they have “no chance of passing.”

Rehberg is no stranger to campaign secrecy.

Earlier this week he got caught failing to disclose one in seven donors in his most recent fundraising report.  Earlier this year, he got caught hiding $25,000 he took from lobbyists in 2011. Rehberg also called measures to improve transparency in political campaigns  “unnecessarily difficult.”

Opposition to Citizens United in Montana has been widespread.  Montanans in November will vote on a ballot measure (I-166) to state that corporations are not people.  As expected, Rehberg won’t say whether he supports the initiative.

“Congressman Rehberg refuses to make our elections more transparent because he refuses to hold himself accountable to Montanans,” said Ted Dick, Executive Director of the Montana Democratic Party.  “After 12 long years in DC, Congressman Rehberg is now leading efforts to defend the broken system that lets special interests buy elections, because he knows they want to buy an election for him.”

Scar

Scar (Photo credit: Wikipedia)

Last year, Congressman Rehberg earned an endorsement, and a $10,00 check, from the organization Citizens United.  Karl Rove’s secretive special interest group Crossroads GPS recently announced a major television ad buy in Montna to help Congressman Rehberg, and they can spend every penny with no transparency thanks to Rehberg’s Citizens United decision.

Yep, the metaphor works. And for those of you not up to speed, Battlestar Galactica is available streaming on Netflix…

Gay Men Are Flunking The Test

Also published on Bilerico.com

Yesterday, I posted an article about  a press release by the Journal Of The American Medical Association:

“…all adult patients, regardless of CD4 cell count, should be offered antiretroviral therapy (ART), according to an article in the July 25 issue of JAMA, a theme issue on HIV/AIDS. Other new recommendations include changes in therapeutic options and modifications in the timing and choice of ART for patients with an opportunistic illness such as tuberculosis.”

This follows the “treatment as prevention” model, based on the scientific research that people with HIV on antiretroviral therapy- with an undetectable viral load- are 96% less likely to pass on the virus.
us-statistics-2.jpgThis seems to be very good news. If you have HIV, you should find out early, get on meds and you’ll have a better chance of living a longer healthier life.

So what’s the problem? The problem is twofold:

  1. People at risk aren’t being tested: 20-25% of all HIV-infected people don’t know they have it.
  2. People at risk are still not being tested: Gay and Bisexual men of all races are the most severely affected by HIV

That’s not a typo- they’re basically the same reason, but there’s a difference. Any guesses?

Hint: It’s probably why most gay men won’t even read this article.

20-25% of all people with HIV don’t know they have it. Why not?

Here’s my take: Denial is one of the strongest mechanisms in the human psyche. It is fed by lack of information, by avoidance and by a strong desire for an alternative reality. If you’ve had unprotected sex, you’ve probably engaged in the process of denial. You’ve probably downplayed the risk, probably lied to yourself a little. You may have even gone over and over it in your mind, seizing every opportunity to deny the possibility of trouble.

“He looked okay”; “He didn’t seem sick”; “He pulled out”; “He would have told me if he had HIV”, etc, etc, and etc.

Well, we all know where that goes…. As individuals, we’re not facing facts. If we were, we’d be getting tested.

us-statistics-1.jpgGay and Bi men of all races are the most severely affected by HIV. Of course. We know that. Don’t we?

Again, denial applies. Gay and Bi men aren’t talking about HIV anymore. Our friends aren’t dying, so there’s no reason to be concerned. People with HIV aren’t out- aren’t well-known in our communities. Why? I was once told “You don’t need to harp about HIV all the time- it’s not that big of a deal.” Except that it is.

HIV has complicated my life in ways many people can’t believe. I am on catastrophic health insurance through the state- almost three times as expensive as my partner’s insurance. I get assistance for my meds- which cost about $25,000 a year- but (crazily), I can’t make more than $30,300 and still qualify for the program. I have joint pain, sleep issues, battles with depression, fatigue and a body that is aging at several times the normal rate– most probably due to inflammation- the hallmark of HIV disease. And yet, if I talk about this to friends or family, I’m seen as a whiner or someone trying unnecessarily to worry people I care about. It’s the “shut up- at least you’re not dying” defense. I know several HIV+ people who haven’t told anyone of their status, mostly because it’s “uncomfortable”.

No shit.

As a community, we’re not facing facts. If we were, we’d be talking to our friends about the importance of maintaining our health. We’d be talking about the hard reality of HIV.

But we’re not. Denial still holds sway, both individually and as a community. We’re lying to ourselves- we’re lying to each other- and infection rates stay the same.

We have a chance to change this trend. But only if everyone with HIV starts treatment, gets into care. This recommendation of the AMA may help with that. But it’s not up to doctors, nurses and social workers, it’s up to us.

We’re being tested, both as individuals and as a community. The problem is, we’re flunking.

Because we’re not showing up.

(Images source)

“All Adult HIV Patients Should Be Offered Antiretroviral Therapy”

From Science Daily:

Included in the 2012 International Antiviral Society-USA panel recommendations for human immunodeficiency virus (HIV) patient care is that all adult patients, regardless of CD4 cell count, should be offered antiretroviral therapy (ART), according to an article in the July 25 issue of JAMA, a theme issue on HIV/AIDS. Other new recommendations include changes in therapeutic options and modifications in the timing and choice of ART for patients with an opportunistic illness such as tuberculosis.

Melanie A. Thompson, M.D., of the AIDS Research Consortium of Atlanta, presented the findings of the article at a JAMA media briefing at the International AIDS Conference.

Journal of the American Medical Association

Journal of the American Medical Association (Photo credit: Wikipedia)

“Since the first antiretroviral drug was approved 25 years ago, improvements in the potency, tolerability, simplicity, and availability of ART have resulted in dramatically reduced numbers of opportunistic diseases and deaths where ART is accessible,” according to background information in the article. “New trial data and drug regimens that have become available in the last 2 years warrant an update to guidelines for ART in HIV-infected adults in resource-rich settings.”

The benefit of suppressing the virus, in my opinion, is greater than the possible toxicity of medication and navigating possible side effects. We know that as long as HIV is in the body, unchecked, it’s doing damage. It’s more likely than possible that people who start antiretroviral therapy early will have less problems with secondary conditions (joint pain, arthritis, memory problems) as they progress in their lives. I think this is tremendous news.

Full Story Here.

PFLAG Director Discusses Catholic Roots

From New Ways Ministry Blog:

Jody Huckaby, the Executive Director of PFLAG (Parents, Family, and Friends of Lesbians and Gays), is profiled in The Advocate, the national LGBT news magazine.

A native of the heavily Catholic state of Louisiana, Huckaby’s profile begins with a familiar story:

“Jody M. Huckaby grew up Catholic, went to Catholic schools and was raised by devout Catholic parents in Eunice.

“So when Huckaby, 47, told his parents while he was in college that he is gay, it was “tough” to do, he recalls.

“ ‘It’s very hard when your religion tells you something is wrong but then you are talking about your child’” Huckaby said recently.

“Still, his parents, who were both raised in Church Point, eventually accepted Huckaby for who he is.

“ ‘They started out rejecting it. Then they moved to tolerance and then went to acceptance and finally they celebrated it,’ Huckaby said.

“The personal journey Huckaby and his parents went through was one of the big reasons Huckaby took a job more than seven years ago as executive director of Parents, Families and Friends of Lesbians and Gays National, also known as PFLAG National.

“PFLAG is a family and straight ally organization that helps to advance equality for lesbians, gays, bisexuals and transgender individuals through support, education and advocacy.”

The article notes that PFLAG is celebrating its 40th anniversary this year.  Begun in 1972, the organization now has over 350  chapters across the country.  Huckaby will be visiting one of the newest chapters in Baton Rouge, the capital of his native state, as this local group celebrates their first anniversary:

“Huckaby said he is excited to speak in Baton Rouge next month not only because of his family ties to Louisiana — he has a sister living in the capital city who is a Catholic nun — but because of the population growth the city has experienced since Hurricane Katrina struck Louisiana in 2005.

“The Baton Rouge chapter president, Carol Frazier, said the organization has achieved steady attendance at its monthly meetings at the Unitarian Church on Goodwood Boulevard.

“ ‘We have between 25 and 35 attendees each month. I think that’s good compared to other chapters that are only a year old. We do see new people each month,’ Frazier said.

“The Baton Rouge meetings usually feature a guest speaker as well as breakout sessions enabling small groups of members to talk about “whatever comes up,” Frazier said.

“ ‘The parents meet in their own group. They don’t always feel comfortable with the younger people,’ Frazier said.

“Varied reactions, feelings and emotions frequently arise in those smaller sessions, Frazier said, ranging from tears and laughter to silence, she said.

“ ‘You can see an interesting growth in people. I remember a mom who came and she didn’t say a word. She didn’t accept her child’s news. Now she speaks freely and is very accepting,’ Frazier said.”

Huckaby offers advice based on his own family’s experience:

“ ‘You can’t preach. People will just walk away. A big message we have is you do not have to throw out your faith to be accepting and loving,’ Huckaby said.

“Although Huckaby and his parents had no experiences with PFLAG when he confided back in college that he is gay, his mother’s turning point to acceptance and understanding of her son came from another, more traditional source.

“Huckaby said his mother read the ‘Dear Abby’ column in the Eunice News religiously throughout her life.

“One day, she read a letter in the column from the mother of a lesbian who asked how she was supposed to deal with the news.

“ ‘The advice was, you still need to love your child just like you did the day before. The second piece of advice was to go find PFLAG and get more information,’ Huckaby said.”

At New Ways Ministry, which is celebrating its 35th anniversary this year, we have witnessed the good work of PFLAG for most of its history.  Although not a religious organization, PFLAG’s simple example of listening, solidarity, and support is a model for the way ministry to parents of LGBT people should flourish.

Fortunate Families, a national network of Catholic parents with LGBT sons and daughters, provides just this type of ministry from a Catholic perspective, in the form of their Listening Parents network:  parents who have been through the experience of their child’s coming out who are available to listen to and be supportive of parents who are just learning such news. (The founders of Fortunate Families, Mary Ellen and Casey Lopata, have contributed two blog posts to Bondings 2.0 on family ministry.  You can access those here and here.)

New Ways Ministry salutes PFLAG on their 40th anniversary and prays in thanksgiving for all they have done to make the world a better place for LGBT people!  We wish them every success in the future!

–Francis DeBernardo, New Ways Ministry

President’s Welcome Video To International AIDS Conference 2012

Some history and a commitment to continue progress:

The Right To Kill 2

After the Gabrielle Giffords shooting, I wrote a piece called The Right To Kill.

I basically said that the insanity of “rights” over the safety of human life has come home to roost. The events in Aurora, preceded by shootings in Tulsa, Seattle, Oakland, Chardon, have brought a little attention to the deadliest shooting crimes in U.S. history– and the world ranking of the United States in terms of gun-related murders (4th highest). Nothing is changing. In fact, it’s probably just getting worse. Joe the Plumber blamed the holocaust on gun control. The American Family Association blames the murders on “liberal churches“- I know- I couldn’t believe it either. Except that I do. Any tragedy to bring the collection money rolling in is fair game for crazy pastors.

And that’s the problem. Crazy people who act out in public seem to give permission to crazy people in charge of congregations and political positions permission to act out, too. To act out with ideology front and center. Not compassion, ideology. And fear. Like I said, crazy. And people believe them. Instead of statistics. Instead of science. Instead of facts.

Roger Ebert, writing for the New York Times, has one of the most eloquent summaries of the Aurora shooting that I’ve read so far. From We’ve Seen This Movie Before:

That James Holmes is insane, few may doubt. Our gun laws are also insane, but many refuse to make the connection. The United States is one of few developed nations that accepts the notion of firearms in public hands. In theory, the citizenry needs to defend itself. Not a single person at the Aurora, Colo., theater shot back, but the theory will still be defended.

I was sitting in a Chicago bar one night with my friend McHugh when a guy from down the street came in and let us see that he was packing heat.

“Why do you need to carry a gun?” McHugh asked him.

“I live in a dangerous neighborhood.”

“It would be safer if you moved.”

This would be an excellent time for our political parties to join together in calling for restrictions on the sale and possession of deadly weapons. That is unlikely, because the issue has become so closely linked to paranoid fantasies about a federal takeover of personal liberties that many politicians feel they cannot afford to advocate gun control.

I’ve no doubt that posturing will constipate any real discussion of this issue- but Ebert adds a final, jarring note to his piece:

Immediately after a shooting last month in the food court of the Eaton Centre mall in Toronto, a young woman named Jessica Ghawi posted a blog entry. Three minutes before a gunman opened fire, she had been seated at the exact place he fired from.

“I was shown how fragile life was,” she wrote. “I saw the terror on bystanders’ faces. I saw the victims of a senseless crime. I saw lives change. I was reminded that we don’t know when or where our time on Earth will end. When or where we will breathe our last breath.”

This same woman was one of the fatalities at the midnight screening in Aurora. The circle of madness is closing.

Indeed. And it’s closing in on all of us.

~

HIV Treatment Breakthrough: Weekly Injection Could Replace Daily Pill Regimen

HIV-1 Gag

HIV-1 Gag (Photo credit: AJC1)

For a number of people with HIV, treatment can be troublesome because medicine should be taken at the same time every day- sometimes more than once a day. Some medications must be taken with food, some without. Some can only be taken near bedtime because they cause drowsiness.

Science Daily reports a treatment breakthrough:

(A) University of Nebraska Medical Center research team’s progress toward developing weekly or twice-monthly injectable antiretroviral therapy (ART) nanomedicines for patients with human immunodeficiency virus (HIV) infection will be highlighted as the cover story in the Journal of Infectious Diseases.

A long-acting, nanoformulated ART (nanoART) would be a substantive improvement over daily and sometimes more complex regimen of pills, said Howard Gendelman, M.D., the lead investigator on the development of nanoART for HIV/AIDS and professor and chairman of the department of pharmacology and experimental neuroscience (PEN) at UNMC.

The journal article hails the successful testing of UNMC’s ART injectables as treatment of HIV-infected mice and in preventing new infections.

“We actually followed the process exactly as we would with a person — and it worked,” Dr. Gendelman said. “This is all very exciting. Although there are clear pitfalls ahead and the medicines are not yet ready for human use, the progress is undeniable.”

This could prove to be helpful- most especially in the developing world- where people have trouble managing a regimen of pills or have low access to long-term medication treatments. But it may have significant impact everywhere, changing the way HIV is treated….

Full article here.

Infographic: Ending The Drug War Will Help End AIDS

From Jag Davies, Drug Policy Alliance in today’s Huffington Post:

Throughout the world, research has consistently shown that drug criminalization forces people who use drugs away from public health services and into hidden environments where HIV risks become significantly elevated. Mass incarceration of nonviolent drug offenders also plays a major role in spreading the pandemic, as inhumane conditions and lack of HIV prevention or treatment measures in prison lead to HIV outbreaks and AIDS cases behind bars – and among families and communities once those imprisoned are released.

Yet in countries where addiction is treated as a health issue, the fight against HIV/AIDS is being won. New HIV infections in countries such as Australia, Germany and Switzerland have been virtually eliminated among people who use drugs, just as mother-to-child HIV transmission has been eliminated in countries that make medicines for pregnant women accessible.

In the United States, however, the federal government has resisted evidence-based HIV prevention strategies — costing us hundreds of thousands of lives and billions of dollars. Congress re-instated a longstanding ban last December that prohibits using federal funds for syringe access programs — a move that will cost thousands of more lives in years to come.

Money talks- just remind your politicians that the money they are not spending on “immorality” is costing the taxpayers 1000x the amount in the long run…

Hope