Light A Candle

My address at the AIDS Outreach Candlelight Vigil 2012:

You may have heard the saying, “It is better to light one candle than to curse the darkness”

For more than 30 years we have been struggling to support people with HIV. We have struggled with shame, anger, deep grief and injustice.

We have lost many good men, women and children.

Husbands, wives, mothers, fathers, sisters, brothers, sons and daughters. Friends.

It was easy back then to just curse the darkness- blame it for not being light.

But there were people who refused to do that.

They raised their voices, they publicly shared their grief, their outrage, their compassion.

They refused to sit helplessly in the dark- they searched for light. And because they found it, we have come a long way from the darkness of 30 years ago.

In some ways, the story of AIDS is something of a human triumph.

In moving from shame to dignity, people began to live longer with medication breakthroughs. People acted out of love, not fear.

People lit candles.

We are just learning that treatment is prevention- HIV+ people on medication are much less likely to pass on the virus.

That means getting everyone at risk tested. And if they are positive, to get them on meds as soon as possible. If we did this, we could stem the tide.

But we know the people most at risk are not being tested. We also know why: Denial, fear and shame are holding that testing room door shut. Cursing the darkness rises once again.

It’s time once again to search for candles to light.

I know we have a difficult job to do. We have to push testing without stigmatizing those infected. We have to ask people to care for their health- and the health of their community, without creating a too-rosy picture of life with HIV.

How do you say “Don’t get HIV. But, if you do get it, it’s not the disaster your worst fears whisper to you”?

It’s hard. But we believe we’re making progress.

Because the most important thing we have learned in 30 years is compassion. It’s the common denominator in all that we do.

It’s what we bring tonight to remember the loved ones we have lost to HIV- what we use to dignify their memory.

I believe that we are witnessing the beginnings of the triumph of compassion over the fear and stigma and shame and ignorance of our past. We are witnessing the beginnings of the inevitable triumph of light over darkness- but only if everyone lights that candle….

People at risk are people- they are worthy of dignity, compassion and respect.

People with disease are still people- they are worthy of dignity, compassion and respect. 

It’s what I believe. I also think it’s what you believe- because you’re here.

“It’s better to light a candle than to curse the darkness.”

As a symbol of that optimism, tonight we light candles.

We represent our hope, our loss, our pain, our shame, our dignity and our resolve with the light of some flickering candles.

Because we refuse to sit in darkness.

Because dignity is worthy of light.

Blocked!

My Speech: Pride Rally 2012

From Yesterday’s Pride Rally: 

Last week someone said to me “Why do you people need a parade? Why do you have to make such a fuss?”

Here’s why:

We have been afraid to be who God created us to be. Sometimes it was our churches that made us afraid.

We have been legislated against- made criminals in the eyes of the law that is supposed to protect us.

We have been killed and we have killed ourselves.

We have lost good men and women to HIV/AIDS.

We have been bullied and teased and yes, driven from our very homes and schools and communities- and state.

We have been hurt and maligned right here under this big sky.

 

Why do we need a parade?

 

To remind us that there are people whose bravery has driven away darkness. Whose voices refuse to give in to hopelessness or complacency or fear.

That together, we can be that voice.

 

A voice to proclaim the goodness of our lives and the lives of our brothers, sisters, parents, children and friends- we are here and like it or not- we are not going away.

 

We will not forget the lives that have lived with pain to bring us here- to this place of hope and triumph.

 

Today is a gorgeous day in Montana History, because the Lesbian, Gay, Bisexual, Two-Spirit, Transgender, Intersex and Queer people of Montana- and our allies- are here to proclaim that we will not let our voice die.

 

We will not be afraid.

 

We will stand up when we are told to lie down.

We will speak when anyone tries to shame us into silence.

We will remain when we are told to leave.

We will proclaim the truth.

 

Firmly and gently and clearly and proudly.

The truth that we are light.

And that light makes Montana more beautiful, not less.  More.

 

I want to hear your voice.

Are We Good?

Are We Beautiful?

Are We Going Away?

 

We live in hope that one day all Americans agree.

Until then- we have a parade.

Because we.

Are not.

Going.

Away.

New Scooby Mix For Summer!

Just in time for summer!  From my friend DJ Scooby:

Hi everyone – Just want to let you know that I uploaded my new continuous mix…

You can listen to it on Soundcloud: http://soundcloud.com/djscoobynyc/chasing-the-sun-2012

Or download as an MP3 file: http://www.mediafire.com/?ih44sxnmcegfznl

Or song-by-song: http://www.mediafire.com/?gik3bnkfmbo05

If you’re interested in seeing the playlist (or checking out my prior mixes), go to my blog: http://djscoobynyc.blogspot.com/

I love these mixes to workout or just for jamming in the car. Free downloads-check them out!

ADAP Watch 4/19/12

Last week (while I was on vacation)- NASTAD released the ADAP waiting list. From NAPWA (emphasis mine):

There’s some good news on the ADAP front: the FY 2011 emergency federal ADAP funding has brought waiting list numbers down in a number of states. South Carolina has eliminated its waiting list altogether, for the time being.

The bad news is that the numbers aren’t coming down very much. Georgia and Virginia – big states with big budgets – account for almost two-thirds of the nation’s total waiting list, and it looks like they are accepting their waiting lists as the “new normal.” Other states have disguised their real unmet need by setting income eligibility ceilings artificially low, and that looks set to become the “new normal,” too.

It’s hard to understand and hard to forgive. Over five years, it will cost the states with visible waiting lists or waiting lists whisked away by lowering income ceilings more to care for PLWHA who become sick enough for Medicaid than it would have cost to give them drugs to keep them healthy. It’s already a dollars-and-cents blunder before we even think about the human cost.

Here are the latest numbers from our friends at NASTAD:

Watch Our Mardi Gras Interview On KBZK

Here!

 

The event information: