Tag Archives: ADAP

AIDS Drug Assistance Program Numbers, 11/03/11

by D Gregory Smith

 

From The NAPWA Positive Voice Newsletter:

The waiting lists numbers keep coming down – a little. The federal government released $1.8 billion to support federal-state HIV partnerships, with $813 million earmarked specifically for ADAP programs with waiting lists.

The release of funds is slow, though, and the four states that account for almost the entire waiting list – Florida, Georgia, Virginia, and Louisiana – aren’t stepping up to the plate to match the additional federal money.

The waiting list states say they can’t afford it. We visited Florida’s ADAP debate in the October 24 Positive Voice. Let’s turn in this issue to Georgia.

Georgia Public Broadcasting reports the state’s waiting list numbers have fallen by about 300, from roughly 1,700 to 1,400, with $3 million in new federal funds. Eliminating the waiting list altogether, state officials say, would cost $15 million the state doesn’t have.

Time for a reality check….

Georgia’s proposed 2012 budget is $20 billion. The $15 million that would eliminate the waiting list amounts to 0.075% – less than one-tenth of one percent – of that budget. Even in a period of state financial stress, with an expected five percent deficit, the needed $15 million is so minuscule that spending it or not spending it to end the waiting list has no material impact on the state’s budget crisis. But Georgia’s political conversation continues to be dominated by proposals to lower higher-income and corporate tax rates and “pay” for the cuts by cutting services and shifting tax burdens to middle and lower-income Georgians.

Georgia’s $15 million we can’t is really a $15 million we don’t want to. And the future cost of this year’s $15 million we don’t want to will be a lot more than $15 million.

Here are the latest waiting list numbers from our friends at NASTAD:

Rehberg’s Ridiculous Healthcare Bill: Resurrecting Non-Science-Based Prevention Policies

by D Gregory Smith

Rehberg’s apparently not swayed by the people in his state affected by HIV. Nor is he swayed by science.

From The AIDS Institute:

 

“If ever passed, this spending bill would set back the progress we are making in preventing HIV and providing basic care and treatment for those who have HIV/AIDS in our country,” commented Carl Schmid, Deputy Executive Director of The AIDS Institute.

House Labor, HHS, Education and Related Agencies Appropriations Subcommittee Chairman Denny Rehberg (R-MT) introduced a fiscal year 2012 spending bill that guts many programs, including health reform, and resurrects non-science based prevention policies.

Most disappointing is how the bill would impede prevention. Rehberg’s bill would cut by nearly $33 million funding for the Centers for Disease Control and Prevention’s (CDC) National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention. This is despite an estimated 50,000 new HIV infections each year and over 230,000 people unaware of their infection. The U.S. government invests only about 3 percent of its HIV funding in prevention. The lifetime cost of caring and treating one person with HIV is approximately $360,000. In order to help achieve the goals of the National HIV/AIDS Strategy to reduce the number of new infections and increase testing levels by 2015, the President has proposed an increase of $57 million for HIV prevention in FY12.

On top of cutting CDC’s budget, the bill would ban federal funding of syringe exchange programs, a scientifically proven method to prevent HIV and other infections while not increasing drug use, and would resurrect failed abstinence only until marriage programs. Additionally, the bill would decimate the Teen Pregnancy Prevention Program by cutting its budget from $105 million to $20 million, eliminate all Title X spending, which funds HIV testing programs for women, and the entire Prevention and Public Health Fund.

The House bill proposes to flat fund the entire Ryan White HIV/AIDS Program, which provides care and treatment to over 550,000 low-income people with HIV/AIDS. It fails to address the crisis in the Ryan White AIDS Drug Assistance Program (ADAP). There are currently over 8,500 people in nine states on ADAP waiting lists and over 445 people in six states who have been disenrolled from the program due to budget constraints and growing enrollment. The AIDS Institute and its partners have been advocating for an increase of at least $106 million. The President has requested a $55 million increase. In order to address the current wait list, an increase of approximately $98 million would be required.

Chairman Rehberg’s bill also prevents implementation of much of the Affordable Care Act, which once fully implemented, would both bring many people with HIV/AIDS into lifesaving care and treatment for the first time and help to prevent HIV.

The one bright spot in the bill is Rehberg’s proposal to increase medical research spending at the National Institutes of Health by $1 billion.

“While we realize we are living in very difficult fiscal times, this bill is not just about making difficult funding decisions, but about resurrecting many controversial policies that will never pass the Congress nor be signed by the President,” commented Michael Ruppal, Executive Director of The AIDS Institute. “As Congress finalizes its FY12 spending bill, The AIDS Institute will work with the House, Senate and the Administration to increase, rather than cut funding for prevention and adequately fund all parts of the Ryan White Program, including ADAP. Additionally, we will work to defeat all extreme policy riders.

The bill (HR 3070) has not been formally considered by the House Appropriations Subcommittee. The Senate Appropriations Committee already has passed its own version of the bill. Since Congress has not passed any spending measures, the government is currently operating under a short term continuing resolution.

This schmuck is completely unwilling to listen to facts- or to believe that HIV is in Montana, and it poses particular problems for his constituents. Maybe it’s time to educate him.

Call his office: (202) 225-3211

Feds’ HIV Budget Rescues ADAP- But At A Price

by D Gregory Smith

I’ve written that the Feds’ HIV budget has been released. It’s not all good news.

 My Bilerico article here.

Feds to Release 1.89 Billion for ADAP, HIV Care

by D Gregory Smith

From The Michigan Messenger:

The federal government Monday announced more than $1.89 billion in funding to states to fight the HIV epidemic with access to care and with more cash for the failing AIDS Drug Assistance Program.

According to an HHS press release, $813 million of that money will go directly to the ADAP programming. An additional $8,386,340 will be issued as a supplement to 36 states and territories currently facing a litany of unmet needs and access issues. The additional money is designed to help those programs reduce or eliminate their waiting lists. They also released an additional $40 million to assist states and territories currently refusing coverage for people in need to reduce the number of people waiting.

ADAP provides access to the costly anti-retroviral medications that have turned HIV into a more manageable disease since its appearance 30 years ago. The drugs can cost tens of thousands of dollars a year in the U.S. The program also assists in paying for drugs to treat opportunistic infections that HIV positive persons can suffer as a result of diminished immune functions.

The ADAP Advocacy Association shows that as of Sept. 22, 10 states had waiting lists totaling nearly 9,000 people awaiting access to the life saving medications:

ADAPs with Waiting Lists
(8,785 individuals in 10 states*, as of September 22, 2011)

Florida: 4,098 people
Georgia: 1,732 people
Idaho: 37 people
Louisana: 1,112 people
Montana: 28 people
North Carolina: 354 people
Ohio: 9 people
South Carolina: 367 people
Utah: 59 people
Virginia: 989 people

In addition to funding ADAP programming, the feds also announced millions in funding for direct medical care as well as programming to assist minorities — who are particularly hard hit by the epidemic — in accessing medical care for the infection.

Kudos to all the activists and HIV care advocates who worked hard for this- and for those of you who signed our petition….

TAKE ACTION!

by D Gregory Smith

I spent the weekend with 30 HIV+ Gay men in the mountains outside of Helena, Montana. They ranged in age from their early twenties to their mid sixties. It was like every other gathering of gay men in many respects- with one exception: we talked a lot about our health- and our medications.

Mostly about the reliability of receiving these life-saving meds.

It creates a lot of stress for us. The meds are expensive, they have side-effects, they are sometimes mailed from pharmacies with in a day or two of our running out. It often requires us to hound our caseworkers to get what we need- every month, in some cases.

As in most cases with issues of efficiency, increased funding will help. But Congress always needs to be hounded in order to give the HIV+ the kind of funding we actually need. The kind of funding that other medically disabled get almost automatically.

We don’t even have enough money to take care of those waiting to be admitted to government programs that people already qualify for.

Thus The Waiting List for the AIDS Drug Assistance Program. It needs to end- and you can help. Click the link below the map.


SIGN THE PETITION TO END ADAP WAITING LISTS HERE   

~ 

ADAP Watch, 9.12.11

by D Gregory Smith

From NAPWA’s Positive Voice Newsletter:

We’re beginning to think we’re trapped in the movie Groundhog Day.

 

Week after week, the waiting list numbers hover just over 9,000. Week after week, Congress doesn’t – and can’t – act. Week after week, Florida alone accounts for nearly half the waiting list numbers, and Florida doesn’t act.

 

Assuming an annual medications cost of $15,000 per ADAP recipient per year, $135 million a year in new ADAP funds would be enough to make this national disgrace go away. That’s less than four one-thousandths of a percent of the federal budget. If the will were there, the money could be found.

 

$60 million would do the job in Florida – not very much, even in Florida’s $70 billion state budget. But Florida doesn’t even seem to be spending the money already available effectively. Just before Labor Day, the Orlando Sentinel reported health officials for Orlando County and three neighboring central Florida counties had underspent their Ryan White funds by a half-million dollars – about six percent of the total $9 million, which suggests a certain lack of commitment to serving the people Ryan White funds are meant to help. And it’s a pity the unused funds couldn’t have been put to other uses, instead of just being help for possible use next year. They could have paid for drugs for more than thirty central Floridians currently on the ADAP waiting list.

 

Here are the latest waiting list numbers from our friends at NASTAD:

Sign the petition to end the waiting list here.

 

ADAP Crisis Makes Local News

by D Gregory Smith

 

An excellent story by Jessica Mayrer of the Missoula Independent highlights the National HIV Drug Crisis- and Montana’s link:

Montanans who can’t afford HIV drugs have recourse. The federally funded AIDS Drug Assistance Program provides medicine at no cost. What worries Smith and his clients is the fact that the program isn’t meeting demand. In January, 4,200 people nationally were waiting for entry into ADAP. At the end of August, that number grew to 9,200. ADAP now provides drugs to 107 of Montana’s 532 known HIV-positive patients, according to the state Department of Public Health and Human Services. In Montana, 28 people now await ADAP assistance. That’s up from 21 last year.

Full story here.

And if you haven’t signed the petition to Denny Rehberg, go here.

 

 

 

 

 

 

 

 

 

Montana Petition To End ADAP Waiting Lists.

by D Gregory Smith

 

Hey friends,

I’m working with Project Inform to help with HIV Advocacy in the State of Montana. One of our projects is to work with Congress to increase ADAP (AIDS Drug Assistance Program) funding. Currently, there are over 9,200  people waiting for permanent funding to access these life-saving medications. 

We can do better. And your signatures can help make a difference.

Won’t you take a minute and sign the petition here? The letter to accompany the signatures is below.

Thank you- ten seconds can make a real difference.

 

 

Dear Chairman Rehberg:

The undersigned individuals and organizations in Montana are writing to urge your support for increased funding for AIDS Drug Assistance Programs (ADAPs) in the Fiscal Year 2012 Labor-HHS-Education Appropriations bill.   ADAPs need at least a $106 million increase to continue to serve the thousands of new clients entering the programs every year.  As you are aware, ADAPs provide HIV-related medications to under insured and uninsured individuals living with HIV/AIDS in the United States. They are a lifeline for people who would otherwise be unable to get treatment they need to stay healthy and productive. We thank you for your past support for ADAP and are especially appreciative of the $50 million increase to ADAPs in Fiscal Year 2011. However, ADAP waiting lists continue to grow at an astronomical rate.

In January of this year, there were 4,200 people on waiting lists. As of August 26, 2011 the number more than doubled to 9,141people in 12 states – including 28 people in Montana – waiting for lifesaving medication. Nineteen ADAPs, including 11 with current waiting lists, have instituted additional cost containment measures since April 1, 2011 such as reduced formularies and enrollment caps. Additionally, ten ADAPs are considering implementing new or additional cost-containment measures by the end of ADAPs current fiscal year (March 31, 2012).

Because of your leadership role on the House Labor-HHS Appropriations Subcomittee, you are in a unique position to help secure this badly needed increase in ADAP funding to help people with HIV in Montana and around the country. While we understand the gravity of the U.S. fiscal situation, we need to ensure that people with HIV and AIDS receive the vital medications that keep them alive. Again we ask that you do everything possible to ensure an increase of at least $106 million to help solve this ADAP crisis.

 

Sincerely,

 

ADAP Waiting List Passes 9,000

by D Gregory Smith


As of August 4th – and for the first time ever – the number of people lingering on AIDS Drug Assistance Program wait lists passed 9,000. A total of 9,039 people in 13 states are now unable to access their medications via the programs, which provide drugs to under and un-insured individuals who are not eligible for other programs such as Medicaid. What’s more, Alabama, which already had a wait list, has reduced its program’s formulary, while Illinois, which already had expenditure caps, has lowered its program’s financial eligibility to 300% the Federal Poverty Level. This brings the total number of states that have enacted “cost-containment” measures to eighteen, plus Puerto Rico.

For more information on the nation’s ADAP crisis, visit www.ADAPaction.org.

Squared Away

by D Gregory Smith

Friends,
Insurance. Check.
New doctor. Check.
Medications. Check.
Happy. Double check.

It’s all going great, and it looks like things will be done well and (almost) as easily as of old. ADAP came through, and EIP came through which give me insurance and covers my doctor and meds. I had labs drawn today, but unless something changes, I’ll be getting labs drawn once every 6 months and have complete and total access to medical care.
And I’m healthy- all things considered. Thanks for the thoughts, prayers, energy, love, whatever you want to call it. I’m deeply appreciative.

Let me know when I can return the favor.